THE ROLE OF SUPPORT GROUPS IN THE COOPERATION BETWEEN PARENTS OF PEOPLE WITH INTELLECTUAL DISABILITIES AND PROFESSIONAL STAFF

Metka NOVAK, Majda KONCAR

Abstract


Introduction: One of the ways of building and developing a better cooperative relationship between parents of people with severe and profound intellectual disabilities and professional staff is the inclusion of parents in support groups for parents and staff in support groups for staff.

Goal: To examine the correlation of the level of cooperative relationship between the parents of people with severe and profound intellectual disabilities and professional staff with the inclusion of parents in support groups for parents and staff in support groups for staff.

Methodology: Respondents: parents (296) of people with severe and profound learning disabilities and staff (298) in five centres across Slovenia; Methods: descriptive statistics, test of homogeneity, the rankit method, one-way analysis of variance; Procedures: survey questionnaires for parents and staff. The data was processed using SPSS software for personal computers.

Results: The difference between the variances of the groups (parent) found is statistically significant (F = 6.16; p = 0.01). Staff included in support groups have a significantly lower level of cooperative relationship with parents (f = 10; M = - 0.12) than staff not included in these groups (f = 191; M = 0.04).

 

Conclusion: In contrast to theoretical findings the results indicated less successful cooperation for professional staff included in support groups. The results furthermore did not confirm any differences in the cooperative relationship of parents included in support groups and those who are not. We suggest an in-depth analysis of the workings of support groups.


Keywords


parents of people with severe and profound intellectual disabilities, professional staff, support groups, cooperative relationship

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References


Beveridge S. Children, Families and Schools. Developing Partnership for Inclusive Education. London/New York: Routhledge Falmer; 2005.

Sylva K. Early childhood education to ensure a »fair start« for all. Combating Educational Disadvantage. Meeting the needs of vulnerable children. London: Falmer Press; 2000.

Zakon o usmerjanju otrok s posebnimi potrebami. ZUOPP – UPB1 Uradni list RS št. 3-101/2007, 2011.

Russell. The expectations of parents of disabled children. British Journal of Special Education 2003, 30(3): 144-149.

Končar M, Antič S. Starši in oblikovanje individualiziranega programa. Ljubljana. Defektologica Slovenica 2006, 14(3): 7-16.

O΄Shea DJ, O΄Shea LJ. Why learn about Students Families? American Journal of Mental Retardation 2001, 94: 231-239.

Sambrook T, Gray P. Recognising and working with parents΄ emotions. London: Routledge-Falmer; 2002.

Vec T. Komunikacija – umevanje sporazuma. Ljubljana: Cankarjeva založba; 2005.

Nichols MP. Die Kunst des Zuhórens. Reinbek: Rowoholt; 2002.

Dale N. Working with families of Children with Special Needs. Partnership and Practise. London/New York: Routhledge; 1996.

Beveridge S. Impermenting partnership with parents in schools. In: S. Wolfendele (ur), Working with parents of SEN Children after the Code of Practise. London: David Fulton; 1997.

Karten TJ. Inclusion Strategies. That Work! Research - Based Methods for the Classroom. California: Corvin Press; 2005.

Crooll P, Moses D. Special Needs in the Primary School. London: Cassel; 2000.

Kasama H, Tett L. Involving parents in their children΄s education in Japan and Scotland. Contrasts in policy an practise. In: S. Riddell, L. Tett (eds), Education, Social Justice and inter-Agency Working: joined-up or fractured policy? London: Routledge; 2001.

McLaughlin J, Webster A. Ationalising knowledge: IT Systems, Professionals Identities and Power. Sociological Review 1998; 46(4): 781-802.

Smith ECT, Gartin CB, Murdick LN, Hilton A. Families and Children with Special Needs. Professional and Partnerships. Incudes the Idea Improvement Act. Upper Saddle River, New Jersey Columbs, Ohio: Merrill Prentice Hall; 2006 17. Goodley D, Lawthom R. Disability Studies and Psychology. Emancipatory Oportunities. V: Gabel, S. & Danforth, S. (Eds), Disability Studies in Education. A Reader. New York: New York Peter Lang; 2008.

McLaughlin J, Goodley D, Clavering E, Fisher P. Families Raising Disabled Children. Enabling Care and Social Justice. Great Britain: CPI Antony Rowe, Chippenham and Eastbourne; 2008.

Goodley D, Lawthom R. Journeys in Emancipatory Disability Research. Alliances between Community Psychology and Disability Studies. Disability & Society; 2005a, 20 (2), 135-151.

Read J. Will the Carers and Disabled Children act 2000 Make a Difference to the Lives of disabled Children and Their Carers? Child: Care, Health and Development 2002; 28(4): 272-275.

Runswick CK. »The Tribunal Was the Most Stressful Thing: More Stressful Than My Son's Diagnosis or Behaviour«. The Experiances of Families Who Go to the Special Educational Needs and Disability Tribunal (Sendist). Disability & Society 2007; 22(3): 315-328.

Davies S, Hall D. »Contact a Family«. Professionals and Parents in Partnership. Archives of Disease in Childhood 2005; 90(10): 1053–1057.

Sloper P, Greco V, Beecham J. Key Worker Services for Disabled Children. What Characteristics of Services Lead to better Outcomes for Children and families? Child: Care, Health and Development 2006; 32(2): 147-157.

Morgan PL. Parenting Your Complex Child. Become a powerful advocate for the autistic, Down Sindrome, PDD, bipolar, or other special-needs child. New York/ Broadway: American Management Association; 2006.

Žorž B. Svetovati ali poslušati. Priročnik za samopomoč in svetovanje v vsakdanjem življenju. Celje: Celjska Mohorjeva družba, 2005.

Powell T. Kako premagamo stres. Ljubljana: Mladinska knjiga; 1999.

Michael M. Lebt die Liebe, die ihr habt. Wie Beziehungen halten. Reinbek: Rowohlt, 2008.

Hanecamp H. Intervizija. Socialno delo. ISSN 0352-7956 1994; 33(6): 503-505.

Bogataj B. Supervizija v vzgojnih zavodih in stanovanjskih skupinah. Socialna pedagogika 1997; 3: 47–70.

Kobolt A, Žorga S. Supervizija: proces razvoja in učenja v poklicu. Ljubljana: Univerza Ljubljana, Pedagoška fakulteta Ljubljana; 1999.

Alessandra T, O΄Connor J. Konfliktfrei arbeiten mit der Platinregel. Wie Sie unterschiedliche Verhaltensstile erkennen und richting darauf reagieren. München: VMI; 2002.

Novak M. Sodelovanje med starši in strokovnimi delavci v socialnovarstvenih zavodih. Doktorsko delo. Ljubljana: Univerza v Ljubljani, Pedagoška fakulteta; 2011.

Walsh F. Normal Family Processes. The Guilford Family Therapy Series. New York/London: The Guildford Pres; 1993.

Yuval-Davis N. Belonging and the Politics of Belonging. Patterns of Prejudice 2006; 40(3): 197-214.

Partington, K. Maternal Responses to the diagnosis of Learning disabilities in Children. A Qualitative Study Using a Focus Group Approach. Journal of Learning Disabilities 2002; 6(2): 163-173.

Morgan PL. Parenting Your Complex Child. Become a powerful advocate for the autistic, Down Sindrome, PDD, bipolar, or other special-needs child. New York/ Broadway: American Management Association; 2006.

Ryan S, Runswick CK. Repositioning Mothers: Mothers, Disabled Children and Disability Studies. Disability & Society 2008; 23(39): 199-210.

Tong R. Love's Labor in the Health Care System. Working toward Gender Equity. Hypatia, 2002; 17(3): 200-213.

Goodley D. Self-Advocacy in the Lives of People with Learning Difficulties. The Politics of Resilience. Buckingham: Open University Press; 2000. 40. Vincent C. Including Parents? Citizenship, Education and Parental Agency. Buckingham: Open University Press; 2000.

Abel E. Who Cares for the Elderly? Public Policy and the Experiance of Adult Daughters. Philadelphia/PA: Temple University Press; 1991.

McLaughlin J, Goodley D. Seeking and Rejecting Certainty. Exposing the Sophisticated Lifeworlds of Parents of Disabled Babies. Sociology 2008; 42(2): 317-335.

Nelson G, Prilleltensky I (Eds). Community Psychology: In Pursuit of Liberation and Well-Being. New York: Palgrave Macmillan; 2004.

Thomas C. Sociologies of Disability and Illness. Contested Ideas in Disability Studies and Medical Sociology. Basingstoke: Palgrave Macmillan; 2007.

Bruder MB. The individualized family service plan (IFSP). ERIC EC Digest #E605. (pdf) (online) 2000. (Cited 2003 May 26); Available from URL: http://ericec.org.

Fox L, Vaughn J, Wyatte ML, Dunlap G. We can't expect other people to understand: Family perspectivies on problem behavior. Exceptional Children 2002; 68: 437-450.

Pelc J. Supervizija za strokovne delavce v izobraževanju. (pdf) (online) 2010. (Cited 2010 May 5); Avaible from URL: http://www2.arnes. si/osljjk1s/07zdrava/ supervi/ supervizija. htm.

Debelak M, Zorec M. Razvojni-edukativni model supervizije v domu za stare. Ljubljana. Socialni izziv 2010; 16(31): 29–31.

Fengler J. Nudenje pomoči utruja. O analizi in obvladovanju izgorelosti in poklicne deformacije. Ljubljana: Temza; 2007.




DOI: http://dx.doi.org/10.2478/jser-2014-0013

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